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THE KISSING BUG

Daisy Hernandez

A True Story of a Family, an Insect, and a Nation's Neglect of a Deadly Disease

Growing up in a New Jersey factory town in the 1980s, Daisy Hernández believed that her aunt had become deathly ill from eating an apple. No one in her family, in either the United States or Colombia, spoke of infectious diseases. Even into her thirties, she only knew that her aunt had died of Chagas, a rare and devastating illness that affects the heart and digestive system. But as Hernández dug deeper, she discovered that Chagas—or the kissing bug disease—is more prevalent in the United States than the Zika virus.

After her aunt's death, Hernández began searching for answers. Crisscrossing the country, she interviewed patients, doctors, epidemiologists, and even veterinarians with the Department of Defense. She learned that in the United States more than three hundred thousand people in the Latinx community have Chagas, and that outside of Latin America, this is the only country with the native insects—the “kissing bugs”—that carry the Chagas parasite.

Through unsparing, gripping, and humane portraits, Hernández chronicles a story vast in scope and urgent in its implications, exposing how poverty, racism, and public policies have conspired to keep this disease hidden. A riveting and nuanced investigation into racial politics and for-profit healthcare in the United States, The Kissing Bug reveals the intimate history of a marginalized disease and connects us to the lives at the center of it all.

Daisy Hernández is a former reporter for The New York Times and has been writing about the intersections of race, immigration, class, and sexuality for almost two decades. She edited Colonize This! Young Women of Color on Today's Feminism and Colorlines, a newsmagazine on race and politics, and she has written for National Geographic, NPR's All Things Considered, Code Switch, The Atlantic, Slate, and Guernica. She is the author of the award-winning memoir A Cup of Water Under My Bed, and is a professor at Miami University in Ohio.
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Published 2021-06-01 by Tin House Books

Comments

"Lyrical, unflinching . Hernández expertly skates the line between memoir and science tome, showing the personal effects of a disease perpetuated by a cascade of systemic failures." ? The Washington Post "A necessary read for anyone concerned about health crises across the world." ? The Boston Globe "Part memoir, part investigative thriller .. Her book shines a light on [a] neglected harm." ? The San Francisco Chronicle "A common but overlooked parasite killed the author's aunt, spurring this exposé." ? The New York Times Book Review "Hernández raises damning questions about which infectious diseases get attention and whom we believe to be deserving of care." ? NPR Books "A trenchant work of investigative journalism. . . weaving in cultural and political analysis, extensive research, and personal history as she chases down answers about her aunt's tragic death from an underreported disease known as Chagas." ? Buzzfeed "Visceral [Hernández] weaves storytelling, science and policy with striking results." ? Newsweek "Compelling and impressive .... Hernández's lucid writing provides a paradigm for how to begin addressing the inequities baked into medicine." ? Shelf Awareness "A riveting investigation of a rare infectious disease, racial politics and for-profit healthcare." ? Book Public "Traces the effects of Chagas on minority communities, revealing how poverty, racism, and public policy have intersected to disrupt adequate healthcare interventions." ? ALTA "A deeply personal, unsparing analysis of how neglected diseases disproportionately affect marginalized peoples in the world's richest country?and why they need not." ? Kirkus Reviews "The engrossing account of a family medical mystery that led to a compassionate investigation of an underattended disease." ? Foreword Reviews

"The engrossing account of a family medical mystery that led to a compassionate investigation of an underattended disease." (starred review)

Winner, PEN/Jean Stein Book Award ($75,000)